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Other Resources

Helpful Resources From Around the Web

Below is a list of resources on the web that we have found to be interesting or helpful to either CF patients and families or those interested in CF fundraising. Enjoy!

Cystic Fibrosis Foundation -

An expansive website from one of the worlds largest Cystic Fibrosis related organization. This site contains a large amount of information on the disease as well as resources for those living with CF.

CFRI (Cystic Fibrosis Research Inc.) -

A Northern California-based non-profit organization that provides a wide range of services to the CF community including actively promoting CF awareness and education as well as raising funds for CF research and education.

Boomer Esiason Foundation -

Founded by former NFL Football star quarterback Boomer Esiason in 1993, The Boomer Esiason Foundation focuses on raising awareness for the disease as well as providing financial support to research aimed at finding a cure.

CF Services Pharmacy -

A pharmacy dedicated to serving the special needs of patients with Cystic Fibrosis, offering specialized services and a focus on patient care.

California GHPP (Genetically Handicapped Persons Program) -

Another incredibly valuable resource for CF patients living in California. GHPP is a health care program for adults with certain genetic diseases. GHPP works with doctors, nurses, pharmacists and many others to provide a variety of different health care services.

Healthwell Grant -

Patient assistance program for medicines for people on limited incomes. 

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